EL SENTIDO EN LA VIDA COMO MEDIADOR DEL IMPACTO DE LA FIBROMIALGIA SOBRE EL BIENESTAR SUBJETIVO

Autores/as

  • Gonzalo Sebastián Peña-Muñante Universidad de Almería https://orcid.org/0000-0002-7990-4867
  • Miriam Giuliana Lúcar-Flores Universidad Peruana Cayetano Heredia

DOI:

https://doi.org/10.4067/s0718-50652024000100215

Palabras clave:

fibromialgia, calidad de vida, bienestar subjetivo, sentido en la vida

Resumen

El dolor crónico no solo afecta el funcionamiento biopsicosocial de una persona, sino también el ámbito existencial. Por esta razón, experimentar sentido en la vida puede tener un papel protector en el bienestar de los pacientes con dolor crónico. El objetivo del presente estudio fue explorar la relación entre el impacto de la fibromialgia y el bienestar subjetivo, contemplando el sentido en la vida como variable mediadora. Participaron 402 mujeres con fibromialgia, a las que se les administró un cuestionario para obtener información sobre el impacto de la enfermedad, el sentido en la vida y el bienestar subjetivo. Se realizaron análisis descriptivos e inferenciales con SPSS. Los resultados indicaron que las relaciones fueron la fuente de sentido en la vida con mayor puntuación. Además, se encontró un efecto indirecto significativo del impacto de la fibromialgia sobre el bienestar subjetivo a través del sentido en la vida. Se concluye que el sentido en la vida puede mediar parcialmente el efecto del impacto de la fibromialgia sobre el bienestar subjetivo.

Citas

Alegre, C., García, J., Tomás, M., Gómez, J. M., Blanco, T., Gobbo, M., Pérez, A., Martínez, A., Vidal, J., Altarriba, E., & Gómez, A. (2010). Documento de consenso interdisciplinar para el tratamiento de la fibromialgia. Actas Españolas de Psiquiatría, 38(2), 108-121. https://dialnet.unirioja.es/servlet/articulo?codigo=3292567

Asociación Médica Mundial (2017). Declaración de Helsinki de la AMM – Principios éticos para las investigaciones médicas en seres humanos. https://www.wma.net/es/policies-post/declaracion-de-helsinki-de-la-amm-principios-eticos-para-las-investigaciones-medicas-en-seres-humanos

Ato, M., López-García, J. J., & Benavente, A. (2013). Un sistema de clasificación de los diseños de investigación en psicología. Anales de Psicología/Annals of Psychology, 29(3), 1038-1059. https://dx.doi.org/10.6018/analesps.29.3.178511

Bennett, R. M., Friend, R., Jones, K. D., Ward, R., Han, B. K., & Ross, R. L. (2009). The Revised Fibromyalgia Impact Questionnaire (FIQR): validation and psychometric properties. Arthritis Research & Therapy, 11(4), 120. https://doi.org/10.1186/ar2783

Boring, B. L., Maffly-Kipp, J., Mathur, V. A., & Hicks, J. A. (2022). Meaning in life and pain: the differential effects of coherence, purpose, and mattering on pain severity, frequency, and the development of chronic pain. Journal of Pain Research, 15, 299-314. https://doi.org/10.2147/JPR.S338691

Busseri, M. A. (2018). Examining the structure of subjective well-being through meta-analysis of the associations among positive affect, negative affect, and life satisfaction. Personality and Individual Differences, 122, 68-71. https://doi.org/10.1016/j.paid.2017.10.003

Cabo-Meseguer, A., Cerdá-Olmedo, G., & Trillo-Mata, J. L. (2017). Fibromialgia: prevalencia, perfiles epidemiológicos y costes económicos. Medicina Clínica, 149(10), 441-448. https://doi.org/10.1016/j.medcli.2017.06.008

Carreno, D. F., Eisenbeck, N., Cangas, A. J., García-Montes, J. M., Del Vas, L. G., & María, A. T. (2020). Spanish adaptation of the Personal Meaning Profile-Brief: meaning in life, psychological well-being, and distress. International Journal of Clinical and Health Psychology, 20(2), 151-162. https://doi.org/10.1016/j.ijchp.2020.02.003

Carro-Castiñeira, T., Vila-Paz, A., & Santos-del-Riego, S. (2023). Factores biopsicosociales y calidad de vida en fibromialgia desde la terapia ocupacional: un estudio cualitativo. Cadernos Brasileiros de Terapia Ocupacional, 31, 3500. https://doi.org/10.1590/2526-8910.ctoAO68235003

Choy, E., Perrot, S., Leon, T., Kaplan, J., Petersel, D., Ginovker, A., & Kramer, E. (2010). A patient survey of the impact of fibromyalgia and the journey to diagnosis. BMC Health Services Research, 10, 102. https://doi.org/10.1186/1472-6963-10-102

Chytas, V., Costanza, A., Mazzola, V., Luthy, C., Galani, V., Bondolfi, G., & Cedraschi, C. (2022). Possible contribution of meaning in life in patients with chronic pain and suicidal ideation: observational study. JMIR Formative Research, 6(6), 35194. https://doi.org/10.2196/35194

Climent, C. O., Ballester, M. C., & Cantus, D. S. (2019). Calidad de vida en pacientes con fibromialgia: revisión bibliográfica. Revista Española de Enfermería de Salud Mental, 8, 4-10. https://doi.org/10.35761/reesme.2019.8.02

Conversano, C., Ciacchini, R., Orrù, G., Bazzichi, M. L., Gemignani, A., & Miniati, M. (2021). Gender differences on psychological factors in fibromyalgia: a systematic review on the male experience. Clinical and Experimental Rheumatology, 39(3), 174-185. https://doi.org/10.55563/clinexprheumatol/73g6np

Cooksey, R., & Choy, E. (2022). Exploring gender differences, medical history, and treatments used in patients with fibromyalgia in the UK using primary-care data: a retrospective, population-based, cohort study. The Lancet Rheumatology, 4(1), 20. https://doi.org/10.1016/S2665-9913(22)00296-X

Costanza, A., Chytas, V., Mazzola, V., Piguet, V., Desmeules, J., Bondolfi, G., & Cedraschi, C. (2020). The role of Demoralization and Meaning in Life (DEMIL) in influencing suicidal ideation among patients affected by chronic pain: protocol of a single-center, observational, case-control study. JMIR Research Protocols, 9(11), 24882. https://doi.org/10.2196/24882

Costanza, A., Chytas, V., Piguet, V., Luthy, C., Mazzola, V., Bondolfi, G., & Cedraschi, C. (2021). Meaning in life among patients with chronic pain and suicidal ideation: mixed methods study. JMIR Formative Research, 5(6), 29365. https://doi.org/10.2196/29365

Csillag, C. (1992). Fibromyalgia: the Copenhagen declaration. The Lancet, 340(8820), 663-664. https://doi.org/10.1016/0140-6736(92)92190-Q

Damásio, B. F., Koller, S. H., & Schnell, T. (2013). Sources of Meaning and Meaning in Life Questionnaire (SoMe): psychometric properties and sociodemographic findings in a large Brazilian sample. Acta de Investigación Psicológica, 3(3), 1205-1227. https://doi.org/10.1016/S2007-4719(13)70961-X

Dezutter, J., Casalin, S., Wachholtz, A., Luyckx, K., Hekking, J., & Vandewiele, W. (2013). Meaning in life: an important factor for the psychological well-being of chronically ill patients? Rehabilitation Psychology, 58(4), 334-341. https://doi.org/10.1037/a0034393

Dezutter, J., Luyckx, K., & Wachholtz, A. (2015). Meaning in life in chronic pain patients over time: associations with pain experience and psychological well-being. Journal of Behavioral Medicine, 38(2), 384-396. https://doi.org/10.1007/s10865-014-9614-1

Di Carlo, M., Farah, S., Bazzichi, L., Atzeni, F., Govoni, M., Biasi, G., Di Franco, M., Mozzani, F., Gremese, E., Dagna, L., Batticciotto, A., Fischetti, F., Giacomelli, R., Guiducci, S., Guggino, G., Bentivegna, M., Gerli, R., Salvarani, C., Bajocchi, G., Ghini, M., … Salaffi, F. (2022). Fibromyalgia severity according to age categories: results of a cross-sectional study from a large national database. Clinical and Experimental Rheumatology, 40(6), 1084-1090. https://doi.org/10.55563/clinexprheumatol/od40pa

Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The Satisfaction With Life Scale. Journal of Personality Assessment, 49(1), 71-75. https://doi.org/10.1207/s15327752jpa4901_13

D’Onghia, M., Ciaffi, J., Ruscitti, P., Cipriani, P., Giacomelli, R., Ablin, J. N., & Ursini, F. (2022). The economic burden of fibromyalgia: a systematic literature review. Seminars in Arthritis and Rheumatism, 56, 152160. https://doi.org/10.1016/j.semarthrit.2022.152060

Eisenbeck, N., Pérez-Escobar, J. A., & Carreno, D. F. (2021). Meaning-centered coping in the era of COVID-19: direct and moderating effects on depression, anxiety, and stress. Frontiers in Psychology, 12, 648383. https://doi.org/10.3389/fpsyg.2021.648383

Frankl, V. (1994). La voluntad de sentido: conferencias escogidas sobre logoterapia. Herder.

Frankl, V. (1997). Teoría y terapia de las neurosis: iniciación a la logoterapia y al análisis existencial. Herder.

Franqueiro, A. R., Yoon, J., Crago, M. A., Curiel, M., & Wilson, J. M. (2023). The interconnection between social support and emotional distress among individuals with chronic pain: a narrative review. Psychology Research and Behavior Management, 16, 4389-4399. https://doi.org/10.2147/PRBM.S410606

Galvez-Sánchez, C. M., Montoro, C. I., Duschek, S., & Reyes del Paso, G. A. (2020). Depression and trait-anxiety mediate the influence of clinical pain on health-related quality of life in fibromyalgia. Journal of Affective Disorders, 265, 486-495. https://doi.org/10.1016/j.jad.2020.01.129

Gayà, T. F., Ferrer, C. B., Mas, A. J., Seoane-Mato, D., Reyes, F. A., Sánchez, M. D., Dubois, C. M., Sánchez-Fernández, S. A., Vargas, L. M. R., Morales, P. V. G., Olivé, A., Muñoz, P. R., Larrosa, M., Ricós, N. N., Sánchez-Piedra, C., Díaz-González, F., & Bustabad-Reyes, S. (2020). Prevalence of fibromyalgia and associated factors in Spain. Clinical and Experimental Rheumatology, 38(1), 47-52. https://www.clinexprheumatol.org/abstract.asp?a=14409

Glaw, X., Kable, A., Hazelton, M., & Inder, K. (2017). Meaning in life and meaning of life in mental health care: an integrative literature review. Issues in Mental Health Nursing, 38(3), 243-252. https://doi.org/10.1080/01612840.2016.1253804

Hayes, A. F. (2022). Introduction to mediation, moderation, and conditional process analysis: a regression-based approach (3ª ed.). Guilford Press.

Jang, S., Kim, E. S., Cao, C., Allen, T. D., Cooper, C. L., Lapierre, L. M., O’Driscoll, M. P., Sanchez, J. I., Spector, P. E., Poelmans, S. A. Y., Abarca, N., Alexandrova, M., Antoniou, A.-S., Beham, B., Brough, P., Carikci, I., Ferreiro, P., Fraile, G., Geurts, S., … Woo, J.-M. (2017). Measurement invariance of The Satisfaction With Life Scale across 26 countries. Journal of Cross-Cultural Psychology, 48(4), 560-576. https://doi.org/10.1177/0022022117697844

Lucas, R. E. (2007). Adaptation and the set-point model of subjective well-being: does happiness change after major life events? Current Directions in Psychological Science, 16(2), 75-79. https://doi.org/10.1111/j.1467-8721.2007.00479.x

Luhmann, M., Hofmann, W., Eid, M., & Lucas, R. E. (2012). Subjective well-being and adaptation to life events: a meta-analysis. Journal of Personality and Social Psychology, 102(3), 592-615. https://doi.org/10.1037/a0025948

Maddux, J. E. (2018). Subjective well-being and life satisfaction: an introduction to conceptions, theories, and measures. En J. E. Maddux (ed.), Subjective well-being and life satisfaction (pp. 3-31). Routledge. https://doi.org/10.4324/9781351231879-1

Marco, J. H., García-Alandete, J., Pérez Rodríguez, S., Guillén, V., Baños, R. M., & Tormo-Irun, M. P. (2022). Spanish validation of the Multidimensional Existential Meaning Scale: which dimension of meaning in life is more associated with psychopathology in people with mental disorders? Frontiers in Psychiatry, 13, 832934. https://doi.org/10.3389/fpsyt.2022.832934

McDonald, M. J., Wong, P. T. R., & Gingras, D. T. (2012). Meaning-in-life measures and development of a brief version of the Personal Meaning Profile. En P. T. P. Wong (ed.), The human quest for meaning: theories, research, and applications (pp. 357-382). Routledge. https://www.drpaulwong.com/documents/HQM2-chapter17.pdf

McMahan, E., & Renken, M. (2011). Eudaimonic conceptions of well-being, meaning in life, and self-reported well-being: Initial test of a mediational model. Personality and Individual Differences, 51(5), 589-594. https://doi.org/10.1016/j.paid.2011.05.020

Organización Mundial de la Salud (2018). CIE-11. Clasificación internacional de enfermedades (11ª ed.). https://icd.who.int/browse/2024-01/mms/es#849253504

Pavot, W., & Diener, E. (2008). The Satisfaction With Life Scale and the emerging construct of life satisfaction. The Journal of Positive Psychology, 3(2), 137-152. https://doi.org/10.1080/17439760701756946

Peltomäki, I., Ojalammi, J., Palmi, N., Sørensen, T., & Saarelainen, S. M. (2024). The Sources of Meaning and Meaning in Life (SoMe) questionnaire in Finnish: sociodemographic findings of meaningfulness and crisis of meaning in the Finnish context. Scandinavian Journal of Psychology, 65(4), 758-767. https://doi.org/10.1111/sjop.13019

Pérez-Aranda, A., Andrés-Rodríguez, L., Feliu-Soler, A., Núñez, C., Stephan-Otto, C., Pastor-Mira, M. A., López-Roig, S., Peñacoba, C., Calandre, E. P., Slim, M., Salgueiro, M., Feixas, G., & Luciano, J. V. (2019). Clustering a large Spanish sample of patients with fibromyalgia using the Fibromyalgia Impact Questionnaire-Revised: differences in clinical outcomes, economic costs, inflammatory markers, and gray matter volumes. Pain, 160(4), 908-921. https://doi.org/10.1097/j.pain.0000000000001468

Salgueiro, M., García-Leiva, J. M., Ballesteros, J., Hidalgo, J., Molina, R., & Calandre, E. P. (2013). Validation of a Spanish version of the Revised Fibromyalgia Impact Questionnaire (FIQR). Health and Quality of Life Outcomes, 11, 132. https://doi.org/10.1186/1477-7525-11-132

Sanabria, J., & Estrada, M. (2018). Implicaciones del dolor crónico en la calidad de vida de mujeres con fibromialgia. Psicologia em Estudo, 23, 81-91. https://doi.org/10.4025/psicolestud.v23.e38447

Santos, P., Monzón, S., Vicente, J., Valero, A., León, I., & Martín, N. (2023). Fibromialgia y su impacto sobre la calidad de vida: una revisión sistemática. Revista Sanitaria de Investigación, 4(6). https://dialnet.unirioja.es/servlet/articulo?codigo=9217738

Schnell, T. (2009). The Sources of Meaning and Meaning in Life Questionnaire (SoMe): relations to demographics and well-being. The Journal of Positive Psychology, 4(6), 483-499. https://doi.org/10.1080/17439760903271074

Segura-Jiménez, V., Álvarez-Gallardo, I. C., Carbonell-Baeza, A., Aparicio, V. A., Ortega, F. B., Casimiro, A. J., & Delgado-Fernández, M. (2015). Fibromyalgia has a larger impact on physical health than on psychological health, yet both are markedly affected: the al-Ándalus project. Seminars in Arthritis and Rheumatism, 44(5), 563-570. https://doi.org/10.1016/j.semarthrit.2014.09.010

Segura-Jiménez, V., Aparicio, V. A., Álvarez-Gallardo, I. C., Soriano-Maldonado, A., Estévez-López, F., Delgado-Fernández, M., & Carbonell-Baeza, A. (2014). Validation of the modified 2010 American College of Rheumatology diagnostic criteria for fibromyalgia in a Spanish population. Rheumatology, 53(10), 1803-1811. https://doi.org/10.1093/rheumatology/keu169

Sørensen, T., La Cour, P., Danbolt, L. J., Stifoss-Hanssen, H., Lien, L., DeMarinis, V., Pedersen, H. F., & Schnell, T. (2019). The sources of meaning and meaning in life questionnaire in the Norwegian context: relations to mental health, quality of life, and self-efficacy. International Journal for the Psychology of Religion, 29(1), 32-45. https://doi.org/10.1080/10508619.2018.1547614

St. John, A. W., Aebischer, J. H., Friend, R., & Jones, K. D. (2022). Fibromyalgia: a clinical update. The Nurse Practitioner, 47(4), 20-30. https://doi.org/10.1097/01.NPR.0000822536.18719.50

Torres, D., Castro, D., & Betancurt, L. (2018). Creencias y calidad de vida en el dolor crónico. Textos y Sentidos, 17, 33-58. https://revistas.ucp.edu.co/index.php/textosysentidos/article/view/68

Vásquez, C., Duque, A., & Hervás, G. (2013). Satisfaction with Life Scale in a representative sample of Spanish adults: validation and normative data. The Spanish Journal of Psychology, 16, 82. https://doi.org/10.1017/sjp.2013.82

Vos, J. (2016). Working with meaning in life in chronic or life-threatening disease: a review of its relevance and the effectiveness of meaning-centred therapies. En P. Russo-Netzer, S. E. Schulenberg & A. Batthyany (eds.), Clinical perspectives on meaning: Positive and existential psychotherapy (pp. 171-200). Springer. https://doi.org/10.1007/978-3-319-41397-6_9

Vos, J. (2021). Cardiovascular disease and meaning in life: a systematic literature review and conceptual model. Palliative and Supportive Care, 19(3), 367-376. https://doi.org/10.1017/S1478951520001261

Wolfe, F., Clauw, D. J., Fitzcharles, M. A., Goldenberg, D. L., Häuser, W., Katz, R. S., Mease, P., Russell, A. S., Russell, I. J., & Winfield, J. B. (2011). Fibromyalgia criteria and severity scales for clinical and epidemiological studies: a modification of the ACR preliminary diagnostic criteria for fibromyalgia. The Journal of Rheumatology, 38(6), 1113-1122. https://doi.org/10.3899/jrheum.100594

Wolfe, F., Clauw, D. J., Fitzcharles, M. A., Goldenberg, D. L., Katz, R. S., Mease, P., Russell, A. S., Russell, I. J., Winfield, J. W., & Yunus, M. B. (2010). The American College of Rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptom severity. Arthritis Care & Research, 62(5), 600-610. https://doi.org/10.1002/acr.20140

Wolfe, F., Smythe, H. A., Yunus, M. B., Bennett, R. M., Bombardier, C., Goldenberg, D. L., Tugwell, P., Campbell, S. M., Abeles, M., Clark, P., Fam, A. G., Farber, S. J., Fiechtner, J. J., Michael Franklin, C., Gatter, R. A., Hamaty, D., Lessard, J., Lichtbroun, A. S., Masi, A. T., … Sheon, R. P. (1990). The American College of Rheumatology 1990 criteria for the classification of fibromyalgia. Arthritis & Rheumatism, 33(2), 160-172. https://doi.org/10.1002/art.1780330203

Yun, J. Y., & Yun, Y. H. (2023). Health-promoting behavior to enhance perceived meaning and control of life in chronic disease patients with role limitations and depressive symptoms: a network approach. Scientific Reports, 13(1), 4848. https://doi.org/10.1038/s41598-023-31867-3

Publicado

10-10-2024

Cómo citar

Peña-Muñante, G. S., & Lúcar-Flores, M. G. (2024). EL SENTIDO EN LA VIDA COMO MEDIADOR DEL IMPACTO DE LA FIBROMIALGIA SOBRE EL BIENESTAR SUBJETIVO. LÍMITE Revista Interdisciplinaria De Filosofía Y Psicología, 19. https://doi.org/10.4067/s0718-50652024000100215

Número

Sección

Artículos de Investigación

Artículos similares

1 2 3 4 5 6 > >> 

También puede {advancedSearchLink} para este artículo.